I then get a call asking us not to bring our Kenny to the funeral. REALLY? He might upset and disrupt people? I already had him ready to go...he was even doing the sign for the Father, Son and Holy Spirit. How can they ask that of us? My husband and I were beyond hurt. We were both in tears! And to not stick up for us. really? Yes, my son is loud, runs around, and cant say true words...oh, and much of what he does, is awkward and clumsy...but he is alive and loves people and gatherings of any kind. He doesn't mean to be loud, but because he is severely deaf and had autism...his voice is loud and very repetitive. We dont go to too many place with him because of these issues, but thought we were safe with family. Ive always heard that you need a villiage to help raise a child (especially a special needs child), and yet, its just...well...not that. I really dont think people realize how bad it feels to be looked at...the head shakes in dislike...why? Because we are doing the best we can with what we've been dealt. Every day is a struggle, yet my husband works hard, i work hard...our children...work hard to keep it all together, the best we can.
Thank you for supporting us and God bless.